Experts call for legislation to safeguard rights of patients with rare diseases
The recent publicity over the ‘ice bucket challenge’, an act aimed both at raising funds for and increasing awareness of the rare disease amyotrophic lateral sclerosis (ALS), has taken China by storm, and has also cast the spotlight on China’s patchy medical laws in relation to patients with rare diseases.
Three HIV carriers sue Chunqiu airlines for refusing to board them
Three HIV carriers who wanted to fly from Shenyang to Shijiazhuang were denied access to the plane by staff from Chunqiu airlines on the ground that “the company rules forbid [us] from boarding AIDS infected passengers”.
How agencies which serve severely sick children work together
Most Chinese charitable organizations, especially those serving the sick and diseased, operate independently and lack effective information communication. Because of this lack of coordination, resources are allocated to different relief efforts very unevenly.
Anti-Drug Social Work Practices in Shenzhen
June 26 marked the International Day against Drug Abuse and anti-drug publicity and campaigns have been carried out throughout China. State regulations have recently expressed support of community organizations participating in drug treatment services.
Report shows 80% pneumoconiosis-affected migrant workers fail to receive compensation
According to a report from the China social assistance Foundation’s “Love save pneumoconiosis” fund only 25.72% migrant workers diagnosed with the disease ask for compensation and only 17.3% of them obtain one.
For the first time, the number of urban and rural residents with pension insurance decreases
Human Resources and Social Security departments recently released data from January to April which shows that 496,850,000 urban and rural people are insured, which 650,000 people less than the number recorded at the end of the 2013.
The Sudan-China Abu Ushar Friendship Hospital: China’s First Overseas Charitable NGO Project
In an article excerpted from the 2012 China Blue Book of Philanthropy, Lin Yuanzhuan recounts an important internationalizing step by the China Foundation for Poverty Alleviation (CFPA).
Scaling Up Social Service Outsourcing in China: An Exploratory Study of HIV CSOs in Yunnan
In this well-researched study, independent consultant Marta Jagusztyn examines how recent plans to scale up government procurement of services will impact grassroots CSOs and how it can be improved to support the long-term development of China’s CSOs.
NGO Participation in Disaster Relief : Profiles of Reconstruction After the Sichuan Earthquake
This is our last in a series of articles on NGO responses to disasters that we are making available in commemoration of the May 12, 2008 Wenchuan earthquake in Sichuan. This article highlights the ongoing work of 10 NGO projects in the long-term reconstruction work in the earthquake-stricken areas of Sichuan.
Gingko Partner Interviews: Wang Yi’ou
The following article is a profile of Wang Yi’ou, founder of the up-and-coming China Dolls Care and Support Association which offers support to people suffering from “brittle bone” and other rare diseases
The Garbage Crisis: NGOs’ Call to Action
This article takes a fresh look at familiar waste management issues. Given the many environmental NGOs involved, waste management has developed into a rare arena for grassroots social action
China’s Garbage Problem Prompts Soul Searching Among NGOs
This provocative, in-depth report addresses head-on the sensitive issue of advocacy using the issue of garbage as a case study.