Keyword: Rare diseases

Goodlytrees: a New Approach to Cerebral Palsy Rehabilitation

Goodlytrees: a New Approach to Cerebral Palsy Rehabilitation

A look at the work done by Goodlytrees, an organization that helps to rehabilitate children with cerebral palsy, a condition especially prevalent in China’s more remote rural areas.

The first national directory of rare diseases published

Last Tuesday, the 22nd of May 2018, the National Health Commission of the People’s Republic of China, the Ministry of Science and Technology, the State Drug Administration, the State Administration of Traditional Chinese Medicine and the Ministry of Industry and Information Technology jointly published the “First Directory of Rare Diseases”, including 121 different rare diseases. To strengthen the work of prevention against rare diseases in China and to safeguard the health of the general public, an expert committee for the treatment and protection of sufferers of rare diseases was commissioned in December 2015. In 2017 they started work on a national directory of rare diseases. Now the inaugural directory has been …read more